On 20 April we sent a letter, co-signed by over 20 wonderful health professionals, charities and MPs, to the Chief Executive of Oxford Health NHS Trust requesting that a leaflet they had produced, “Coronavirus and Fatigue”, be immediately removed because it contained incorrect and potentially damaging information. You can read that letter here.
As an update, we are pleased to report that by the end of the day the leaflet had been removed from their website.
We have, however, yet to receive a reply from the Trust, or any acknowledgement of our letter.
A few days later it was highlighted that a link to the same leaflet had been found on the Worcestershire Health & Care Trust website. We sent the same letter to their Chief Executive with the same request.
Within a few hours of sending the email, we found the leaflet had also been removed from their website.
We have, however, yet to receive a reply from this Trust either, or an acknowledgement of our letter.
Due to the lack of response, we can only assume that the contents of our letter have helped to remove these materials, but it is encouraging to see them taken offline.
If you see any more inappropriate information out there please do get in touch, and we will continue our one-sided communications…
And finally – next week is ME Awareness week. We will be posting regularly through the week, and keep your eyes peeled for some very exciting news.