Search
  • PhysiosforME

Update on our Response to the Oxford Leaflet

On 20 April we sent a letter, co-signed by over 20 wonderful health professionals, charities and MPs, to the Chief Executive of Oxford Health NHS Trust requesting that a leaflet they had produced, “Coronavirus and Fatigue”, be immediately removed because it contained incorrect and potentially damaging information. You can read that letter here.


As an update, we are pleased to report that by the end of the day the leaflet had been removed from their website.


We have, however, yet to receive a reply from the Trust, or any acknowledgement of our letter.


A few days later it was highlighted that a link to the same leaflet had been found on the Worcestershire Health & Care Trust website. We sent the same letter to their Chief Executive with the same request.


Within a few hours of sending the email, we found the leaflet had also been removed from their website.


We have, however, yet to receive a reply from this Trust either, or an acknowledgement of our letter.


Due to the lack of response, we can only assume that the contents of our letter have helped to remove these materials, but it is encouraging to see them taken offline.


If you see any more inappropriate information out there please do get in touch, and we will continue our one-sided communications…


And finally – next week is ME Awareness week. We will be posting regularly through the week, and keep your eyes peeled for some very exciting news.

367 views0 comments

Recent Posts

See All

Heart Rate Monitor Pacing Survey – Results

In October we presented "an international survey of experiences and attitudes towards Pacing using a heart rate monitor for people with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome." The surve

Heart Rate Monitoring Survey

A new survey has been released, led by our very own Dr Nicola Clague-Baker: "An international survey of experiences and attitudes towards Pacing using a heart rate monitor for people with Myalgic Ence

A Parent's Story

This time last year we published guest blogs by Alex and Sian, who are children living with ME. They discussed their experiences with ME and how they managed it alongside their education. There are al