Search
  • PhysiosforME

Our submission to NICE Guideline review

In October 2019 we submitted out evidence to NICE as part of their Guideline review.


We submitted 3 papers showing the adverse physiological effects of exercise:

https://www.ncbi.nlm.nih.gov/pubmed/31161646 https://www.ncbi.nlm.nih.gov/pubmed/29308330 https://www.ncbi.nlm.nih.gov/pubmed/30968005


We also submitted:


- the survey from Forward ME showing 80% harm from Graded Exercise Therapy

- our own survey showing 53% of physio interactions result in deterioration,


- details of the interventions that DID help (massage, passive stretching, individual tailored approach)


We’re so pleased to be registered stakeholders. Updates will follow as and when we receive them.


First published on social media on 16 October 2019

137 views0 comments

Recent Posts

See All

Heart Rate Monitor Pacing Survey – Results

In October we presented "an international survey of experiences and attitudes towards Pacing using a heart rate monitor for people with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome." The surve

Heart Rate Monitoring Survey

A new survey has been released, led by our very own Dr Nicola Clague-Baker: "An international survey of experiences and attitudes towards Pacing using a heart rate monitor for people with Myalgic Ence

A Parent's Story

This time last year we published guest blogs by Alex and Sian, who are children living with ME. They discussed their experiences with ME and how they managed it alongside their education. There are al