We are thrilled to announce that our paper: "Home-based testing protocol to measure physiological responses to everyday activities in ME: a feasibility study" is now available as open access through the journal "Fatigue: Biomedicine, Health & Behavior."
The aim of the study was to assess the feasibility and acceptability of a home-based testing protocol to measure physiological responses in people with ME during everyday activity, such as sitting, standing, climbing the stairs and kitchen tasks.
The research was funded by the ME Association Ramsay Research Fund and led by members of Physios for ME, along with Professor Helen Dawes, a specialist in exercise science and neuroscience, and Professor Sarah Tyson who specialises in neurological rehabilitation and also lives with ME.
You can read the paper in full here.
This is a promising set of results for going forward. Lots to work with and consider. I would personally like to see a study looking at lactate levels before and after treatment with Pyridostigmine bromide. I couldn't get food to my mouth and chew it without regular breaks. It took me a very long time to be able to eat a small meal and then I would crash during digestion. Mestinon completely changed that for me and has had a huge impact on what I'm able to do, not only physically but cognitively. I was not at all surprised by threshold levels for cognitive activity because my cognitive abilities have always been impacted at least as severely as physical abilities.…