ME Research Workshops
- PhysiosforME
- May 8, 2024
- 2 min read
A series of online workshops are running this summer for researchers, health professionals and people with ME, with the aim to raise the profile of ME/CFS clinical research, increase collaboration, attract new researchers and formulate research priorities.
The workshops are connected with the Research Working Group, set up by the UK Clinical Research Collaboration as part of the government delivery plan for ME/CFS. Our very own Dr Nicola Clague-Baker has been part of the Research Working Group and is hoping to attend each workshop.
This is a real opportunity for researchers and health professionals, both within and outside of the field of ME/CFS, to contribute to this important discussion, as well as a chance for people with ME to share their valuable knowledge and experience.
The workshops are listed below. Each will be run independently and should be signed up for individually using the links provided.
1. Clinical trial design in people with ME/CFS – 4th June 13:00 to 15:30
The speakers and discussions will look at clinical trial design in people with ME/CFS – how to optimise it, possibilities for a core outcome set and lessons from other disease areas.
2. Clinical trial platform studies – 6th June 11:00 to 12:00
An online discussion about the Octopus multi-arm, multi-stage treatment trial for multiple sclerosis and lessons for clinical research in ME/CFS, particularly for drug repurposing studies.
3. Drug repurposing clinical trials in people with ME/CFS – 26th June 13:00 to 15:30
The speakers and discussions will look at drug repurposing including clinical use and research findings, study design, and potential drugs such as low dose naltrexone (LDN).
4. ME/CFS research and underserved groups - 16th July 10:00 to 12:30
This workshop will look at three areas, and will include breakout groups for discussion in each of these areas;-
a) improving diagnosis and health care provision in people with ME/CFS particularly those who are already minoritized or socially disadvantaged in society.
b) disadvantaged groups within ME/CFS - the severely affected and children and young adults.
c) widening recruitment and participation in clinical trials for ME/CFS.
Focusing on research workshops that prioritize the patient's voice is the right way to ensure that future studies are actually relevant to the community's needs. The way these workshops facilitate dialogue between researchers and patients is a brilliant example of collaborative education. For those writing about the history or communication aspects of these medical movements, seeking Online English Assignment Help in Australia can help them articulate these complex social dynamics with greater clarity and impact. It ensures that the patient-led research narrative is preserved accurately in academic records. What has been the most surprising insight gained from the collaboration between the researchers and the workshop participants?
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