• PhysiosforME

ME & Education - Alex's Story

We'd like to share a young person's story about managing ME and their education.

Alex is 14 years old and has written this for us. We are so grateful to him for taking the time to share his story.

"When I first became poorly I would only go in for one session every other day for an hour, but this was too much for my body to handle. It left me in tears, I was exhausted and in pain. Pretty quickly this dropped to one session on a Friday, IT, which I really enjoyed. It was still exhausting but because it was once a week I could recover from my crashes, whereas every other day gave me no time to recover. I was soon in a wheelchair (which my friends loved to push!) and this helped, as it reduced my pain but did lead to negative comments from pupils that didn’t know me.

My consultant made the decision to sign me out of education in school and recommended online learning. This was really positive for me, as I no longer needed to push myself to get up, get dressed and fed before travelling to school (this was as exhausting as it was attending school), now I could get up when I wanted, eat breakfast and attend school in my pj’s if I wanted to!

I started with one lesson a day, (Monday – Thursday) and I was able to pace my new red activity, so I wasn’t booming and busting. Gradually we upped it to include homework as well as the lesson. Over the next year we increased it to 2 lessons and homework from both subjects, I swapped English for Science during the Summer term of 2020 and finally we were able to increase it this September to three lessons with homework, so I am studying English, Maths and Science which will give me the correct number of GCSE’s to move into further education in September 2022.

There have been good days and bad days, my brain fog can have an impact in my lessons and my ability to concentrate/find the right wording, but overall being able to attend school on line has meant I have been able to continue with my education but I haven’t fallen into a cycle of crashing and burning, whereas unfortunately, many other children with ME do.

Like a normal teenager there are some days when I wish I could stay in bed, but I do understand the importance of an education so I am grateful for how lucky I have been so far that my school (Wellington Academy) provide me with an online provision.

I am proud of how far I have come, I can remember the day I became poorly with ME and couldn’t get out of bed, had to bum shuffle up and down stairs, whereas now I can pace, carefully, my mobility and education."

By Alexander Cousins

Age 14

349 views0 comments

Recent Posts

See All

REGAIN trial for Long Covid

In December we became aware of a trial from the University of Warwick investigating whether online exercise programmes could help people recovering from Covid-19. The trial is called “REGAIN” and aims

An Early Christmas Present for Physios for ME

In May 2020 we were thrilled to announce that we had obtained funding from the ME Association Ramsey Research Fund for a study; “Feasibility of investigating oxygen consumption (VO2), heart rate, bloo

Physios for ME View on NICE Guidelines

The National Institute for Health and Care Excellence (NICE) have produced a long-awaited revision of their guidance: “Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis

  • Facebook
  • Twitter

Physios for ME

© 2020 by Physios for ME

Proudly created with

The information provided on this website is meant to inform and signpost helpful resources. Any treatment for a person with ME should always be individualised, monitored and constantly evaluated


We want to link with physiotherapists or people with ME.

Whether you need advice, resources or just to share your story. 

Contact us at 

This site was designed with the
website builder. Create your website today.
Start Now