Using the NICE Guidelines

In the UK the NICE Guidelines for ME/CFS were updated in 2021.

These key paragraphs are worth quoting if you are not comfortable following a treatment programme.

1.1.5

 

Explain to people with ME/CFS and their family or carers (as appropriate) that they can decline or withdraw from any part of their care and support plan and this will not affect access to any other aspects of their care. They can begin or return to this part of their plan if they wish to.

1.5.3

 

[Health professionals should] Recognise that the person with ME/CFS is in charge of the aims of their care and support plan