Today is Severe ME Day. To mark the day, we have launched a page dedicated to severe ME, aimed at educating and advising physiotherapists on how to work with people who have severe ME. You can find the page here.
The 25% Group, a charity designed to specifically support those with severe ME, sum up what Severe ME Day means:
"Severe ME day is to remember everyone who is suffering or who has ever suffered from Severe and Very Severe Myalgic Encephalomyelitis.
This day aims to bring public attention to the illness for the sake of all those presently suffering from Severe Myalgic Encephalomyelitis and to remember all those who have died from ME.
A day to honour the strength of spirit of all those who have endured and continue to endure decades of suffering and profound physical dysfunction and yet receive little, or no recognition or help, but rather continue to experience gross misrepresentation and misinterpretation of their illness and profound disability."
Wow u summed it up perfectly!! Thank y’all so much! You are a blessing to those of us suffering w and being made to feel it’s a weak character (when it’s definitely not) or that we are mentally off, if anything I’m depressed from dealing w this everyday and nothing working to help me and drs doubting it even exists!! That is my experience so I thank God for y’all!! 🙌🏼🙌🏼🙏🏼🙏🏼💕💕💪🏼💪🏼